The PATIENTS Program has compiled the following training resources to assist researchers who are interested in conducting patient-centered outcomes and community-engaged research.

Click or tap on each category listed below to see the full range of resources available.

Grant Infrastructure

eSRS Training - Part 1
DUNS Number (Part 1)

Part 1 of a video tutorial for obtaining a DUNS number

eSRS Training - Part 2
DUNS Number (Part 2)

Part 2 of a video tutorial for obtaining a DUNS number

U.S. Small Business Administration
Getting a DUNS Number

Before you can bid on government proposals, you need to obtain a Dun & Bradstreet, or D-U-N-S, Number, a unique nine-digit identification number for each physical location of your business. D-U-N-S Number assignment is free for all businesses required to register with the federal government for contracts or grants.

AHRQ
Informed Consent and Authorization Toolkit for Minimal Risk Research

This toolkit contains information for people responsible for ensuring that potential research subjects are informed in a manner that is consistent with medical ethics and regulatory guidelines.

HHS Office for Human Research Protections (OHRP)
When the Assurance Comes A Knockin': OHRP's FWA and IRB Registration Processes

The goal of this hour-long course is to help research teams improve the readability of consent forms and other participant materials.

Kaiser Permanente Washington Health Research Institute
Program for Readability In Science & Medicine (PRISM)

The goal of this hour-long course is to help research teams improve the readability of consent forms and other participant materials.

Community-Based Research

University of Washington
Developing and Sustaining effective CBPR partnership

A 7-unit curriculum that covers the CBPR process from development to sustainability.

NIH
Finding and Using Health Statistics

Describes the range of available health statistics, identifies their sources and helps you understand how to use information about their structure as you search.

Pragmatic Clinical Trials

CMTP
Pragmatic Clinical Trials

Ellen Tambor, research manager at the Center for Medical Technology Policy, explains pragmatic clinical trials, which look at whether a treatment will work under real-life conditions and whether it works in a way that matters to patients.

Observational Study Designs

AHRQ
Training Modules for the User's Guide for Developing a Protocol for Observational Comparative Effectiveness Research

A series of presentations based upon AHRQ's User's Guide for Developing a Protocol for Observational Comparative Effectiveness Research.

Overview of Health Services Research

University of Maryland
Overview of Health Services Research

Eleanor M. Perfetto, PhD, professor at the University of Maryland School of Pharmacy, provides an overview of health services research (HSR), identifies and discusses the intersection of HSR, epidemiology and policy, and presents examples of HSR.

Qualitative Study Methods

Academy Health
Introduction to Mixed Methods

An introduction to mixed methods and includes applied examples from public health services and systems research (PHSSR). The course is intended for researchers at all levels as well as practitioners looking to translate research findings.

National Centre for Research Methods
How many qualitative interviews is enough?

In this NCRM Methods Review paper, the authors gather and review responses to the question of, "How many interviews is enough?" from 14 renowned social scientists and 5 early career researchers.

Johns Hopkins
Issues in Survey Research Design

Online course that leads participants through the process of designing their own survey. Examines the major decisions faced by a health researcher who wants to design and implement a survey.

Translation and Dissemination

VizHealth
Visualizing Health

Provides a wizard for creating graphics to disseminate health information in a way that is optimal for different patient populations and different types of information.

AHRQ (University of North Carolina at Chapel Hill)
Health Literacy Universal Precautions Toolkit

The toolkit offers primary care practices a way to assess their services for health literacy considerations, raise awareness of the entire staff, and work on specific areas.

Heterogeneity of Treatment (HTE)

National Pharmaceutical Council
Individual Treatment Effects

Patients, payers, researchers, and other health care stakeholders discuss the concept of individual treatment effects, or heterogeneity, and why it is important to consider it when making health care treatment and coverage decisions.

Competency

Office of Minority Health (HHS)
Implementing Language Access Services in Healthcare Organizations

This guide is intended to help health care organizations implement effective language access services to meet the needs of their limited-English-proficient patients, and increase their access to health care.

The Commonwealth Fund
Cultural Competence in Health Care: Emerging Frameworks and Practical Approaches

A white paper that defines cultural competence, the barriers and benefits to a culturally competent approach, and provides models of culturally competent care.

Health Disparities

Public Health Reports
Reducing Diabetes Health Disparities through Community-Based Participatory Action Research: The Chicago Southeast Diabetes Community Action Coalition

A case study detailing findings from CBPR addressing health disparities in diabetes management.

Ethics

University of Michigan Medical School
The Belmont Report (Part One: Basic Ethical Principles)

An overview of the three basic ethical principles - respect for persons, beneficence, and justice.

University of Michigan Medical School
The Belmont Report (Part Two: Applying the Principles)

Applying ethical principles in informed consent, the risk/benefit ratio, and in the selection of human subjects.

Systematic Reviews

The Cochrane Collaboration
Introduction to Systematic Reviews

Describes the history, aims, and structure of the Cochrane Collaboration, discusses the rationale for systematic reviews, and outlines the process for undertaking a Cochrane Review.

Health Policy

The Henry J. Kaiser Family Foundation
Health Reform FAQs

Answers to many of the frequently asked questions about health reform.

The Center for Medicare Advocacy
Medicare Basics

A video timeline of Medicare

The Henry J. Kaiser Family Foundation
Health Insurance Changes Coming Your Way Under the Affordable Care Act

A walk through the basic changes in the way Americans will get health coverage and what it will cost starting in 2014, when major parts of the Affordable Care Act, also known as "Obamacare" go into effect.

The Henry J. Kaiser Family Foundation
Summary of the Affordable Care Act (Including Implementation Timeline)

Summary of the ACA, including a timeline of how the law will be put in to effect. Though much of the law has already been implemented, it provides a sound overview of how the law progressed.

KFF
The Affordable Care Act: A Brief Summary

A summary of key elements of the ACA.

Health Informatics

University of Minnesota
Interprofessional Healthcare Informatics

A free course that examines the implications of informatics for practice, in nursing, public health, and health care in general.

AHRQ
Medical Informatics for Better and Safer Health Care

A summary of years of research by the AHRQ on various health informatics platforms and their successes and pitfalls.

Patient/Stakeholder Engagement

Center for Medical Technology Policy (CMTP)
Continuous Stakeholder Engagement in CER on Uterine Fibroids

Speaker Ellen Tambor, MA, describes stakeholder engagement throughout the comparative effectiveness research (CER) process in the context of an ongoing program of CER in the area of uterine fibroids, and discusses factors related to the selection of stakeholders and methods of engagement at each stage of research.

National Health Council / National Pharmaceutical Council
Meaningful Patient Engagement in Comparative Effectiveness Research

Keynote (C. Daniel Mullins, PhD) from a symposium to guide the development of comparative effectiveness research, evaluate its results, and assist in communicating CER findings to the right audiences.

PCORI
The PCORI Methodology Report

The PCORI Methodology Committee provides critical guidance to the institute in advancing this mission, and to the research field more broadly. The committee was established by the PPACA to "develop and improve the science and methods of comparative clinical effectiveness research." This report summarizes the committee's work to date in meeting that charge.

PCORI
PCORI Patient and Family Engagement Rubric

The rubric specifically focuses on patient and family engagement in research to help illustrate promising practices emerging in this relatively new area of engagement in research.

University of Washington
Developing and Sustaining Effective CBPR Partnership

A 7-unit curriculum that covers the CBPR process from development to sustainability.

PCORI
Promising Practices in Meaningful Engagement in the Conduct of Research

PCORI-funded researchers and stakeholder partners discuss successful practices of patient and stakeholder engagement in all stages of the research process, from helping craft the research question to ensuring dissemination of the research results.

AHRQ (University of North Carolina at Chapel Hill)
Health Literacy Universal Precautions Toolkit

The toolkit offers primary care practices a way to assess their services for health literacy considerations, raise awareness of the entire staff, and work on specific areas.

ISPOR 18th Annual International Meeting Second Plenary Session
Patient Involvement in the Drug Development Process

An interview with Key Opinion Leader Freda C. Lewis-Hall, MD, DFAPA, executive vice president and chief medical officer, Pfizer, Inc., New York, NY.

Implementation

University of Maryland

Implementation Science Study Design and Methods Used by University of Maryland Investigators (flyer)

This session introduces study designs and methods used for implementation studies by University of Maryland investigators. Drs. Holt, Nahm, Newhouse, and Resnick discuss their approach and their lessons learned.