The PATIENTS Professors Academy
Communities are tired of helicopter research – when academic and other research institutions “helicopter in” to a community for data or biospecimens, then fly away never to be seen again. The PATIENTS Program at the University of Maryland School of Pharmacy provides a successfully proven approach to continuous engagement in patient-centered research.
The benefits of our research approach, proven over the past seven years, include:
- An authentic commitment to – and from – the community
- Faster recruitment and greater retention in studies
- Enhanced diversity so that the research results are representative of all of us
- Better patient self-management due to the inclusivity of the community in research
We want to build upon our success in conducting patient-centered research and replicate the nationally renowned work the PATIENTS Program has conducted in Baltimore in other cities and rural areas across the United States. Our PATIENTS Professors Academy will teach the PATIENTS Program 10-Step Framework for continuous patient and stakeholder engagement so research is conceptualized and driven by communities of patients and their care providers. Graduates of The PATIENTS Professors Academy will be able to advise companies, government agencies, community-academic partnerships, and other entities on ways to make clinical and translational research more relevant, appealing, and diverse.
The PATIENTS Professors Academy isn’t just for patients. The program also is designed to instruct researchers on how to develop authentic relationships with patients and community partners, such as our PATIENTS Professors. Researchers will learn how to participate in bidirectional learning activities to determine how to develop study protocols that are meaningful and address patients’ concerns and questions. The PATIENTS Professors Academy also engages others who may be part of a Community Advisory Board, which includes other stakeholders that influence patients’ health care decisions, such as community health care providers, community leaders, or policy makers.
PATIENTS Professors teach researchers how to make research more relevant to patients. As a result, more patients and a greater diversity of patients will join your study. Through bidirectional learning, patients learn more about research from researchers. It’s a win-win shared learning experience at the PATIENTS Professors Academy.
What does development of the PATIENTS Professor Academy entail?
Co-developing training modules with existing PATIENTS Professors and an assessment plan to evaluate the modules on an annual basis.
Recruiting and retaining new “PATIENTS Professors,” members of the community who will instruct researchers on what is important to patients, how best to engage patients, and how to translate and disseminate critical information to patients. They will also teach their community and help train future generations of “PATIENTS Professors.”
Stakeholder training for industry, policy makers, and government leaders to listen to patient and community voices as part of a bidirectional learning process with reciprocal benefits.
Through the PATIENTS Academy, PATIENTS Professors teach researchers how to make research more relevant to patients. As a result, more patients and a greater diversity of patients will join a study. Through bidirectional learning, patients learn more about research from researchers. It’s a win-win shared learning experience at the PATIENTS Professors Academy.
For more information or to schedule a meeting, please contact:
C. Daniel Mullins, PhD
Professor and Chair PHSR Department
University of Maryland School of Pharmacy
220 Arch Street, 12th Floor
Baltimore, MD 21201